Navigating childhood illness as a parent can be all consuming, incredibly challenging, fraught with uncertainty, and feel isolating. Many people, including well-meaning and supportive friends and family, don’t understand and can’t relate to your parenting experience. As a parent, you are not only trying to cope and navigate your child’s care, but you also bear the emotional load of supporting your child in their coping. And, if you have other children, you are also helping them cope and adjust. Lastly, managing the daily busyness and complexities of parenting, while carrying these added tasks related to your child’s care needs and healthcare is extremely difficult to do day in and day out.
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